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6. After about an hour we get the blood results, CBC, differential (BMT) and chemistries and maybe some other treatments, like yesterday’s red blood.
7. We see a PA, usually the same one, and he gets examined.
8. The nurse goes over all of his medications and dosages with me
9. Sometimes we see a BMT doctor, the attending, or Wes Brown comes over to examine him and chat with us
I read a lot while he’s there, sometimes listen to music if the room is too noisy, and often take the time to go to the grocery store and do errands. I only leave if there’s nothing happening, if we’re not waiting to see someone or for some significant results, because those would definitely occur while I’m gone.
All of the doctors are very reassuring about Barry’s symptoms. They keep saying “After all you’ve been through, with two transplants, two courses of Campath, chemo, radiation, etc., of course you feel lousy.”
So is this transplant harder or easier than the last? I think harder. Even though Barry’s hospitalizations haven’t been life-threatening like the last time, this is the second-time around, and the risks are higher. (David Miklos also said the other day that very few people get 100% engraftment on a second transplant — glad he didn’t tell us that before.) It’s completely exhausting and also a very isolating experience. We’re living in a beautiful apartment complex, with nice places to walk, a pool, and a hot tub and the weather has been glorious, as seen from our closed windows. I guess I’m sounding whiney.
In reality, we are very encouraged. While before Friday we were guardedly optimistic, now I would say that we are cautiously optimistic. Not sure if that explains it but it’s the best I can do.
With much love,