SHORT TIME MUSINGS

Today, I received what veterans call an “early out.” I am receiving a good conduct discharge on Feb. 2, nine days early. I’ve taken a lot of drugs. I haven’t missed an infusion. I have kept to my diet. I dutifully drink 90+ fluid ounces of liquid every day. I’ve earned it. I’m really a short timer now! (I also hereby reserve the right to change tenses within a single paragraph!) Read the rest of this entry »

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January 25, 2007 — We’re moving home early

Dear Family & Friends,

We got great news yesterday. Barry will be released home next week. It’s kind of like being let out of jail. He has passed the danger zone of Acute Graft vs. Host Disease (known to us as GVHD) and will no longer be seen in the Cancer Center, but will have regular clinic appointments with Dr. Miklos, his BMT doc, whom we have grown to love and respect. Read the rest of this entry »

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NOT IN VEIN

No, that’s not a misspelling. About a week ago the nurses noticed some discharge at the place where my central venous catheter entered my chest. I was experiencing no pain but out of caution they swabbed the area and sent a specimen to the lab. It turned out positive for a virus called pseudomonas. So they pulled out the catheter. For the past week, I have had to go to the ITA every day for an infusion of antibiotics to kill it off. My luck again, they got it early. It hadn’t entered my blood stream and disseminated. They say that if it did, it could have been life threatening. Wow! I sure wish I had a functioning immune system. As Joni Mitchell says, “you don’t know what you’ve got ’til it’s gone.” Read the rest of this entry »

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A GLASS HALF FULL

It is day 73 and I am feeling pretty good. I can walk like a normal person. I can work out with light free weights. Every day, I seem to get stronger. This makes me nervous. Whenever I am feeling good, I look over my shoulder for some damn Damocles who is lurking about waiting to lop of my head. I can’t shake this feeling that something nefarious is afoot in transplant land. In this case, my mind is working out a scenario something like this: You’re feeling pretty good, you have no evidence of even mild graft versus host disease maybe that means that the transplant is not working; maybe your old, leukemia-ridden blood is winning the battle. Of course, the same logic could work equally well if I was feeling lousy. Read the rest of this entry »

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January 14, 2007 — Coming Down the Home Stretch

Dear Family & Friends,

Today is Day 72 of the 100 days after Barry’s transplant that we are required to be in Palo Alto. We have given our 30-day notice at our apartment, and expect to move home the weekend of February 10. After that, Barry will be able to resume a more normal, but not totally normal, life. Read the rest of this entry »

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